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Rare Disease Patient Registries: Key to Drug Development and Access
Understanding Rare Disease Registries Part 1
Rare disease market access webinar: Challenges facing orphan medicines entering Europe
European Rare Kidney Disease Registry (ERKReg) - explanatory video for patients
Developing a patient registry into an online rare disease community?/ Dr Nick Sireau, Chairman, AKU
What are the 5 key ingredients to a rare disease registry?
Rare Disease Patient Registries - Pulse Infoframe
Janet Woodcock, Director CDER FDA on NORD Registry Program
From Data To Cures: Speeding The Way For Rare Diseases
Let's Chat About ... Patient Registries for Rare Disease
Advancing Research Through the Global PNH Patient Registry
Accelerating Drug Development for Rare Diseases through Data Sharing and Analysis
